contact     |     Partner Countries of the SCNIR     |     German

 

 

 

 

Forms

Patient Questionnaire
  European SCNIR Protocol
 
  Registration Package
  Registration Form

           → Glycogenosis Type IB
           → Shwachman-Diamond-Syndrome
 
  Consent Form for
  Adult Patients/Parents of Minor Patients
  Children
  SCNIR Cellbank
  Molecular Genetic Testing
 
  Yearly Summary Report
  Yearly Summary Report
           → Glycogenosis Type IB
           → Shwachman-Diamond-Syndrome
           → Transplantation Follow-up
 
Laboratory Diagnostics
  Request for G-CSF receptor mutation analysis
  Request for Gene mutation analysis
  Accompanying form for biological material (Cell Bank)
 
  Special Events
  Transplant
  Pregnancy
  Event
  Leukemia
  Death